TERMS AND DEFINITIONS

Beneficiary

is the person benefitting from a trust.

Activities of Daily Living - ADLs

are daily, routine skills an individual needs in order to function.  Examples include:  eating, bathing, moving, toileting and grooming.

Day Training & Habilitation Program - DT&H

is a licensed organization that assists individuals with disabilities to develop and maintain life skills, participate in community life, and engage in activities of their own choosing.

Department of Human Resources - DHS

provides health care, economic assistance and other essential services for those who do not have the resources to meet their basic needs and are least able to help themselves.

Developmental Disability - DD

is a mental and/or physical condition that manifests before age 22, substantially affects functioning in several major life activities, and usually lasts through life.

Employment Network - EN

is an entity that contracts with the Social Security Administration (SSA) that provides and coordinates the delivery of necessary services to Social Security disability beneficiaries participating in the Ticket to Work program.

Formal Supports

are community supports for individuals with disabilities that are provided by services and programs.

Global Developmental Delay

is a significant lag in meeting important developmental milestones, including:  physical, cognitive, behavioral and social development.

Informal Supports

are community supports for individuals with disabilities that are provided by family, friends and social network groups.

Instrumental Activities of Daily Living - ADLs

are basic skills an individual needs in order to function.  Examples include:  shopping, managing fnances, essential household chores, planning and preparing meals.

Intermediate Care Facility for Persons with Developmental Disabilities - ICF DD

is a residential facility or licensed health care institution that provides health and rehabilitatiave services for persons with developmental disabilities or related conditinos who require active treatment.

Irrevocable Trust

is a trust that cannot be changed or cancelled after it has been created.

Medical Assistance - MA

is a publicly funded health care program for individuals who meet certain income and other criteria, including persons with disabilities.

Minnesota Department of Health - MDH

is a state agency whose mission is to protect, maintain and improve the health of all Minnesotans.

Nursing Facility - NF

is a facility or part of a facility licensed to provide nursing care for persons who are unable to properly care for themselves.

Parental Fee

is a monthly amount paid by parents of children under 18 accessing TEFRA.  It is based on family income and size.

Personal Care Assistant/Assistance - PCA

provides day-to-day assistance and support to individuals with disablities to help them be more independent in their homes and in the community.

Plan for Achieving Self Support - PASS

is a Supplemental Security Income (SSI) work initiative that lets individuals with disabilities set aside money and other assets for items or services to reach specific work goals.

Related Condition

is a condition closely related to a developmental disability that is severe, chronic, results in impairment of general intellectual functioning or adaptive behavior, requires treatment or services similar to those required for persons with developmental disabilities, manifests before age 22, is likely to continue indefinitely, is not attributable to mental illness, and results in substantial functioning limitations.

Revocable Trust

is a trust that can be changed or cancelled after it has been created.

Social Security Administration - SSA

is a federal agency that administers Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI) programs.  These two major programs provide cash benefits to persons with disabilities.

Social Security Disability Income - SSDI

is a program under Retirement, Survivor and Disablity Insurance (RSDI) that provides cash benefits to individuals who have a disabilty and have worked a certain number of quarters or had a parent or spouse who worked a certain number of quarters and have paid into the Social Security System.  SSDI helps offset the costs of food, clothing and shelter with monthly benefits.

Spenddown

is an amount of money that a person enrolled in a Minnesota Health Care Program (MHCP) is required to pay before they are eligble for Medical Assistance (MA).

State Medical Review Team - SMRT

is a division of the Department of Human Services (DHS) that makes disability determinations using criteria from the Social Security Administration (SSA).

Supplemental Security Income - SSI

is a federal needs-based program for children and adults who have been been able to work or have not worked enough to pay into the Social Security System.  SSI helps to offset the costs of food, clothing and shelter with monthly benefit payments.

Tax Equity Fairness and Responsibility Act - TEFRA

is a component of Medical Assistance (MA) that helps cover health care costs for children with disabiilties.  Only the child's income is used to determine eligibility; however there may be parental fees, depending on family income and size.

Trustee

is the person or entity responsible for the management and distribution of the assets of a trust.

Social Security Disability Income (SSDI)

Social Security Disability Income (SSDI) is a federal insurance program funded by payroll taxes.

It is for individuals who have been in the workforce, have paid into the Social Security system, and have become disabled and are unable to work. In certain situations it is also available to individuals who have never worked.

SSDI is not based on financial need and is program under RSDI (Retirement, Survivor, and Disability Insurance).

SSDI Criteria for an Adult with a Disability

Definitions of terms highlighted in Green Italics can be found in the right sidebar.

  • You must have worked long enough, and recently enough, to qualify for benefits by paying into the Social Security system. SSA work credits are based on total yearly wages or self-employment income. More information on work credits can be found here.
  • You must meet the SSA Definition for Disability for Adults – must meet all:
    - You cannot do work that you did previously, 
    - You cannot adjust to other work because of your medical conditions,
    - Your disability has lasted or is expected to last for at least one year or result in death. 
    (Individuals who have partial or short-term disability are not eligible.)

 If an adult with a disability qualifies for SSDI benefits, family members may qualify for benefits on his/her earning record.

SSDI Criteria for a Child (under 18) with a Disability

  • A child's disability is not taken into account when determining eligibility for benefits as a dependent under their parent's earning record. This is a family benefit.
  • More information can be found here.

SSDI Criteria for an Adult Child (over 18) with a Disability

  • It is not necessary for the adult with a disability to have ever worked, as benefits are paid on their parent's earning record.
  • Must meet the SSA Definition for an Disabled Adult Child – must meet all:
    - The child's disabling impairment must have started before age 22
    - He/she must meet the definition of disability for adults
    - He/she must be unmarried, or married with certain requirements
    - The parent, who paid into Social Security, must be entitled to disability or retirement benefits or be deceased (and be insured for Social Security) for the disabled adult child to receive benefits

An adult child already receiving SSI benefits should check to see if they qualify to receive additional SSDI benefits on their parent's earning record.

More information on SSDI:

SSDI Disability Planner– has information on qualifying and applying for benefits on a person's earning record.

Benefit Eligibility Screening Tool (BEST) – provides information on eligibility for any benefits Social Security administers.