Helpful Resources

General Resources

The Bugabees

The idea for the Bugabees came from one mother's need to educate her young daughter about food allergies, and she was inspired by the millions of other families also seeking ways to learn and cope with this condition.  Bugabee characters were created to help children remain healthy and happy in spite of a food allergy diagnosis.

The Child Neurology Foundation

The Child Neurology Foundation is the outreach arm of the Child Neurology Society, providing information, education, and advocacy for child neurologists and other medical professionals -- and for patients, parents, and member groups dealing with an array of neurologic conditions.

DailyMed

From the National Library of Medicine, DailyMed provides high quality information about marketed drugs.  Drug labeling on this website is the most recent submitted to the Food and Drug Administration (FDA) and currently in use; it may include, for example, strengthened warnings undergoing FDA review or minor editorial changes.

Disability Benefits 101 (DB 101)

Minnesotans with disabilities want to work. However, many people with disabilities fear that if they go to work, they’ll lose needed health care and other disability benefits. With DB 101 people can explore different ways to balance benefits and work.

Family-to-Family Health Information Center

PACER's Family-to-Family Health Information Center provides a central source for families of children and young adults with special health care needs and disabilities to obtain support, advocacy, and information about the health care system.

Family Voices of Minnesota

Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through their state and national networks, they provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care.

Got Transition?

Got Transition? is a national resource for health care professionals, families, youth and state policy makers focusing on a young adult's transition from pediatric to adult health care.  This site services as the basis for an information exchange about health care transition, particularly as pertaining to youth with special health care needs. 

Healthcare.gov

Healthcare.gov is a federal government website managed by the U.S. Department of Health & Human Services.

Independence Day Clothing

Sensory-friendly and reversable apparel that has no tags, no zippers, no buttons, and no worries.  GPS optional.

Liquid Hope

Liquid Hope is the world's first shelf stable organic whole foods feeding tube formula and meal replacement.  For use under medical supervision, it is gluten, dairy, soy and corn free. 

Metro Friendship Foundation (MFF)

Social skills enhances the quality of life for individuals with high-functioning Autism by developing social understanding. The cost for the necessary therapy is prohibitive to many families and not covered by most insurance programs. By providing scholarships for social skills education, individuals who may otherwise be unable to afford these services will receive the training they need to succeed at home, in school, on the job and in life. Full or partialscholarships will be awarded to individual applicants based on the availability of funds, the eligibility of the applicant, and the recommendation of the MFF Scholarship Committee. 

Minnesota Children and Youth with Special Health Needs (MCYSHN) - Minnesota Department of Health

Their mission is to provide statewide leadership through partnerships with key stakeholders including families, children and youth with special health care needs, providers, public health and other state and/or community organizations for the purpose of improving the access and quality of, health care and other service systems that are designed to meet the needs of children with special health care needs and their families.

Minnesota Healthcare Programs Application Assistance – The Arc Greater Twin Cities

Arc advocates guide individuals and families through the process of applying for Minnesota health plans and tracks their applications through the approval process. 

National Organization for Rare Disorders (NORD)

NORD is a unique federation of voluntary health organizations dedicated to helping people with rare “orphan” diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

Office of the Ombudsman for Mental Health and Developmental Disabilities

An Ombudsman is an official who is designated to assist you to overcome the delay, injustice or impersonal delivery of services.

Patient Advocate Foundation

The mission of the Patient Advocate Foundation is to provide effective mediation and arbitration services to patients to remove obstacles to healthcare including medical debt crisis, insurance access issues and employment issues for patients with chronic, debilitating and life-threatening illnesses.

PubMed

PubMed comprises more than 21 million citations for biomedical literature from MEDLINE, life science journals and other online books.  Citations may include links to full-text content from PubMed Central and publisher websites.

Quilted Illusions

Quilted Illusions provides weighted quilts, vests and blankets as well as textured fabric blankets to provide deep pressure therapy.  All products can be customized for individual needs.

State Services for the Blind

Facilitates the achievement of vocational and personal independence by Minnesotans who are blind, visually impaired or DeafBlind.

Washington County Autism Resource Guide

The purpose of this guide is to provide relevant information about autism resources near or in Washington County.

Therapy Products and Equipment

Abilitations

Abilitations products provide solutions for balance, mobility, positioning, play, communicatin, sensory solutions, fine motor, and body works.

Achievement Products

Achievement Products offers the broadest assortment of products for young children with special needs.  From pressure pockets to swings, oral motor therapy tools to positioning wedges, they offer a wide variety of well-priced innovative products.  They specialize in carrying a diverse line of products that satisfies the needs of children in the classroom and at home.

Autism Shop

Autismshop.com is the online home of the Autism Resource Network, and is a Minnesota nonprofit corporation that is a one-of-a-kind book and toy store that is packed with merchandise and information for individuals with ASD and those who love, care for, and educate them.

Flaghouse

Flaghouse strives to be the supplier of choice to professionals and consumers seeking resources for physical activity, recreation, education and special needs.

Mayer-Johnson

Mayer-Johnson enhances learning and communication for individuals with special needs by delivering thousands of unique special education tools that meet a wide range of goals.

SouthPaw Enterprises

Southpaw is dedicated to developing and manufacturing sensory integration dysfunction (DSI) and neurodevelopmental products that help therapeutic professionals, people with special needs, their families, and other professionals, solve problems or meet new challenges.