TERMS AND DEFINITIONS

Beneficiary

is the person benefitting from a trust.

Activities of Daily Living - ADLs

are daily, routine skills an individual needs in order to function.  Examples include:  eating, bathing, moving, toileting and grooming.

Day Training & Habilitation Program - DT&H

is a licensed organization that assists individuals with disabilities to develop and maintain life skills, participate in community life, and engage in activities of their own choosing.

Department of Human Resources - DHS

provides health care, economic assistance and other essential services for those who do not have the resources to meet their basic needs and are least able to help themselves.

Developmental Disability - DD

is a mental and/or physical condition that manifests before age 22, substantially affects functioning in several major life activities, and usually lasts through life.

Employment Network - EN

is an entity that contracts with the Social Security Administration (SSA) that provides and coordinates the delivery of necessary services to Social Security disability beneficiaries participating in the Ticket to Work program.

Formal Supports

are community supports for individuals with disabilities that are provided by services and programs.

Global Developmental Delay

is a significant lag in meeting important developmental milestones, including:  physical, cognitive, behavioral and social development.

Informal Supports

are community supports for individuals with disabilities that are provided by family, friends and social network groups.

Instrumental Activities of Daily Living - ADLs

are basic skills an individual needs in order to function.  Examples include:  shopping, managing fnances, essential household chores, planning and preparing meals.

Intermediate Care Facility for Persons with Developmental Disabilities - ICF DD

is a residential facility or licensed health care institution that provides health and rehabilitatiave services for persons with developmental disabilities or related conditinos who require active treatment.

Irrevocable Trust

is a trust that cannot be changed or cancelled after it has been created.

Medical Assistance - MA

is a publicly funded health care program for individuals who meet certain income and other criteria, including persons with disabilities.

Minnesota Department of Health - MDH

is a state agency whose mission is to protect, maintain and improve the health of all Minnesotans.

Nursing Facility - NF

is a facility or part of a facility licensed to provide nursing care for persons who are unable to properly care for themselves.

Parental Fee

is a monthly amount paid by parents of children under 18 accessing TEFRA.  It is based on family income and size.

Personal Care Assistant/Assistance - PCA

provides day-to-day assistance and support to individuals with disablities to help them be more independent in their homes and in the community.

Plan for Achieving Self Support - PASS

is a Supplemental Security Income (SSI) work initiative that lets individuals with disabilities set aside money and other assets for items or services to reach specific work goals.

Related Condition

is a condition closely related to a developmental disability that is severe, chronic, results in impairment of general intellectual functioning or adaptive behavior, requires treatment or services similar to those required for persons with developmental disabilities, manifests before age 22, is likely to continue indefinitely, is not attributable to mental illness, and results in substantial functioning limitations.

Revocable Trust

is a trust that can be changed or cancelled after it has been created.

Social Security Administration - SSA

is a federal agency that administers Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI) programs.  These two major programs provide cash benefits to persons with disabilities.

Social Security Disability Income - SSDI

is a program under Retirement, Survivor and Disablity Insurance (RSDI) that provides cash benefits to individuals who have a disabilty and have worked a certain number of quarters or had a parent or spouse who worked a certain number of quarters and have paid into the Social Security System.  SSDI helps offset the costs of food, clothing and shelter with monthly benefits.

Spenddown

is an amount of money that a person enrolled in a Minnesota Health Care Program (MHCP) is required to pay before they are eligble for Medical Assistance (MA).

State Medical Review Team - SMRT

is a division of the Department of Human Services (DHS) that makes disability determinations using criteria from the Social Security Administration (SSA).

Supplemental Security Income - SSI

is a federal needs-based program for children and adults who have been been able to work or have not worked enough to pay into the Social Security System.  SSI helps to offset the costs of food, clothing and shelter with monthly benefit payments.

Tax Equity Fairness and Responsibility Act - TEFRA

is a component of Medical Assistance (MA) that helps cover health care costs for children with disabiilties.  Only the child's income is used to determine eligibility; however there may be parental fees, depending on family income and size.

Trustee

is the person or entity responsible for the management and distribution of the assets of a trust.

Consumer Directed Services

Consumer Directed Services are options for individuals who would like the freedom and responsibility of directing their own care.  Consumer directed programs include the Consumer Support Grant, Family Support Grant and Consumer Directed Community Supports.

Consumer Support Grant (CSG)

Definitions of terminology highlighted in Green Italics can be found in the right sidebar.The Consumer Support Grant is a state-funded program, administered by the county that is an alternative to the traditional home care services of: home health aide, private duty nursing (PDN) services and Personal Care Assistance (PCA) services. Eligible persons receive monthly cash grants that offer flexibility to direct, manage and plan their own services in partnership with the county. Spouses, parents of a minor child, legal guardians, and other relatives, along with friends and neighbors can become PCAs.

DHS Eligibility Criteria – must meet all

  • Be eligible for Medical Assistance (MA)
  • Be able to direct and purchases their own care and supports or have a family member, legal representative or other authorized representative available to purchase, arrange and direct care on their behalf
  • Be eligible and approved for home care services
  • Have a functional limitation that requires ongoing supports to live in the community
  • Live in a natural home setting that is not licensed by the Minnesota Department of Health (MDH) or the Department of Human Services
  • Not concurrently using Waivered Services, Minnesota managed care programs, or MA home care program services

Contact your Washington County Developmental Disabilities Social Worker for more information on applying for a Consumer Support Grant. Together you will develop a service plan that is individualized for your child. CSG amounts are based on the PCA assessment done by the county public health nurse See Personal Care Assistance section for more information on PCA assessments.   

What types of services can be paid for with a Consumer Support Grant

  • PCA, with flexibility in managing staff
  • Respite care
  • Specialized equipment
  • Nutrition services
  • Home adaptations
  • Transportation

Need more information?

More information on the Consumer Support Grant can be found here.

Family Support Grant (FSG)

IMPORTANT:  The following program is not an entitlement program. This means eligibility does not guarantee funding due to a possible waiting list.  It is recommended that eligible persons get on the waiting list for a future available slot.

The Family Support Grant is a state-funded program, administered by the county, that provides cash grants to families of children with disabilities to help offset expenses directly related to their child’s disability. The goal of the Family Support Grant is to prevent or delay out-of-home placement and to promote family health and social well-being by facilitating access to family-centered services and supports. Funds are issued in the form of cash, voucher, or direct county payment to a vendor.

One-time and ongoing Family Support Grants are available.

DHS Eligibility Criteria

  • Be under age 21
  • Be certified disabled
  • Lives in their biological or adoptive home or lives in an Intermediate Care Facility for Persons with Developmental Disabilities (ICF/DD) and would return to their family home if a grant was awarded
  • Meet family annual adjusted gross income (AGI) limit (except in extreme hardship)

 

The amount allocated is based on individual needs, but there is a maximum amount that can be given. Contact your Washington County Developmental Disabilities Social Worker for application information.

What types of services can be paid for with a Family Support Grant

  • Computers
  • Educational services
  • Medical services and Medications
  • Respite Care
  • Specialized clothes or dietary needs
  • Specialized equipment
  • Transportation
  • Specialized Daycare for children 12 years of age or older.  Day care for children under 12 years of age would not be reimbursable unless cost was over and above the rates for children without disabilities and is attributed to additional 1:1 staff.

If your family moves to another county, the grant funds transfer to the new county of residence.

Need more information?

More information on the Family Support Grant can be found here.

Consumer Directed Community Support Waiver (CDCS)

IMPORTANT:  The following program is not an entitlement program. This means eligibility does not guarantee funding due to a possible waiting list.  It is recommended that eligible persons get on the waiting list for a future available slot.

Consumer Directed Community Supports (CDCS) is a unique waivered service option. It allows for more flexibility and responsibility and expands consumer choice. Individuals have a greater choice in services and supports and can hire and manage direct care staff, including parents and spouses. CDCS may include services and supports available on traditional waivers as well as additional options for needed that are tailored to meet individual needs.

There are CDCS options for all of the Home and Community-Based Waiver Programs that serve people with disabilities: 
     - Community Alternative Care (CAC) Waiver
     - Community Alternatives for Disabled Individuals (CADI) Waiver
     - Developmental Disability (DD) Waiver, and
     - Traumatic Brain Injury (TBI) Waiver

You can choose to stop CDCS services and return to a traditional waiver at any time. This may be an option for individuals that:

  • Have reached adulthood and are using DT&H services. DT&H funding must come from a CDCS budget, but there is a separate funding stream for individuals on traditional waivers.  However, individuals turning 21 in 2013 and 2014 who are using CDCS will be able to apply for an additional 20% of funding for day supports.
  • Feel hiring and managing direct care staff is no longer desirable.
  • Need more staffing hours available through personal supports on a traditional waiver.

Eligibility criteria for CDCS are the same as for each traditional waiver (CAC, CADI, DD or TBI).

CDCS is not an option for individuals living in hospitals, nursing homes, Intermediate Care Facilities for Persons with Developmental Disabilities (ICF/DD), foster care, certified board and lodging, assisted living or other licensed or registered setting.

Community Support Plan:

A Community Support Plan reflects services and supports designed by you or your parent/responsible party to meet your identified needs, goals and outcomes you desire. The CDCS annual budget is based on information from the community support plan. The plan should include all of the services and supports that will be used for the following year.

Allowable Expenditures fall into 4 categories:

  1. Personal assistance - Individuals hire and manage their own caregivers ,including parents, with the help of a fiscal support entity.
  2. Environmental modifications and provisions – Some allowable items include: assistive technology, special diets, and transportation.
  3. Self-direction support activities – Some allowable items include: help in finding employees and managing the budget and flexible case management.
  4. Treatment and training – Some allowable items are: Day Training and Habilitation programs (DT&H), independent living services, caregiver training and education.

Unlike a traditional waiver, funds for Day Training and Habilitation Programs (DT&H) must come from the CDCS budget. However, individuals turning 21 in 2013 and 2014 using CDCS will be able to apply for an additional 20% of funding for DT&H supports.  (See the Entering Adulthood section for more information on DT&H programs.)

Services that are available through CDCS:

Fiscal Support Entity (FSE) - A Fiscal Support Entity is a required service under CDCS.  A FSE helps individuals with financial management for their employees as well as managing and paying for services and supports, but does not assist in writing the Community Support Plan or limit or restrict service or support providers.  There are several types of FSEs that offer different levels of support.

          - A list of approved Fiscal Support Entities can be found here.

Support Planner Services  - A Support Planner is certified by the Department of Human Services (DHS) to help support individuals through the CDCS process. A Support Planner can help provide information about CDCS, help develop a Community Support Plan, find services and supports, assist with finding and maintaining staff, and help solve problems that may occur.

          - A list of certified Support Planners can be found here.

          - Qualifications for becoming a Support planner can be found here.

Person-centered Planning - CDCS uses a person-centered planning approach. Individuals set their goals, create their service plans, choose their service providers and direct and manage their workers. Self-determination is a key component of CDCS and allows the freedom, authority and responsibility to make choices.

- Person Centered Planning - The Arc Greater Twin Cities

Need more information?

More information on Consumer Directed Community Supports can be found in the CDCS Consumer Handbook.

Consumer Directed Community Supports  Expenditure Guide - Client Driven Support